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Name
NUM FOSA Rare Diseases
Description

Fach- und Organspezifische Arbeitsgruppen (FOSA) des Netzwerks Universitätsmedizin (NUM) – Rare Diseases

FOSA-Kerndatensatz IAG

Im Rahmen des Netzwerks Universitätsmedizin (NUM) legt jede Fach- und Organspezifische Arbeitsgruppe ihren eigenen Kerndatensatz fest, der sich so weit wie möglich am MII FHIR KDS orientieren soll. Der berühmteste FOSA-Kerndatensatz heißt GECCO, German Corona Consensus Dataset.

Zwischenzeitlich ist die FOSA-IAG für Seltene Erkrankungen gegründet worden. Notwendige (wenngleich noch nicht hinreichende) Voraussetzung der NUM-Förderung von Studien, Registern und Dokumentationen ist die Nutzung eines FOSA-Kerndatensatzes, der durch seine FOSA gepflegt wird.

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Properties Prefix: fosa- Default language: Deutsch (de-DE) Contains reusable content?The contents of this 'project' are considered suitable for re-use by other projects when this setting is active. Is private?The project is not listed in the menus and ignored in searches when this setting is active. This useful for projects in incubation fase. You may still work in the project based on direct URLs Experimental/Test?Project is experimental or meant to test things rather than aimed at production use Notifier: Determines the project global issue notifier setting (on/off - default is 'on'). Note: changes to this setting are immediately saved.
Publication location
Project overview Project Index
Project Id 2.16.840.1.113883.3.1937.777.81
Project Last modified 2024-04-19 14:34:25
Repository reference
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mide- http://art-decor.org/decor/services/ DECOR
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Contributors/Copyright
Contributor Type Logo Copyright years
Berlin Institute of Health at Charité (BIH)
Author 2024
Authors
Name Email Subscribe to all issuesEvery author is notified by default for events on issues where he is the author or from the moment he is assigned to an issue. If you would like to keep track of all issue updates, set this to 'on'
Administrator Not visibleThis info is only visible to this author and any decor-admin author Not visibleThis info is only visible to this author and any decor-admin author
Dr. Kai Heitmann Not visibleThis info is only visible to this author and any decor-admin author Not visibleThis info is only visible to this author and any decor-admin author
Miriam Hübner Not visibleThis info is only visible to this author and any decor-admin author Not visibleThis info is only visible to this author and any decor-admin author
Steffen Sander Not visibleThis info is only visible to this author and any decor-admin author Not visibleThis info is only visible to this author and any decor-admin author
Adam Graefe Not visibleThis info is only visible to this author and any decor-admin author Not visibleThis info is only visible to this author and any decor-admin author
Josef Schepers-Fischer Not visibleThis info is only visible to this author and any decor-admin author Not visibleThis info is only visible to this author and any decor-admin author
Marco Schaarschmidt Not visibleThis info is only visible to this author and any decor-admin author Not visibleThis info is only visible to this author and any decor-admin author
Versions / Releases
Date By Description Status Publication
2024-01-12 11:10:47 kai
Projekt erstellt
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